Dr. Jainith Lowvanshi | MBBS•MD•DNB (India 🇮🇳) on Instagram: "☀️ When sunlight becomes dangerous… Xeroderma Pigmentosum (XP) is a rare genetic condition where even small amounts of UV rays can cause severe skin damage, early aging, and increase the risk of skin cancer. 🩺 Key facts: 🔹 Extreme sensitivity to sunlight 🔹 Dry, freckled skin from childhood 🔹 Eye irritation & damage 🔹 Requires strict sun protection Early diagnosis = safer life. If you notice unusual skin changes after sun exposu

Positive Exposure on Instagram: "This Rare Disease Day, we asked some of our community members and advocates what “rare” means to them. Check out this great video by Amy! Amy has Xeroderma pigmentosum (XP), a rare, inherited genetic disorder characterized by extreme sensitivity to ultraviolet (UV) radiation. 300 million people worldwide live with rare diseases. In the United States, the vast majority of the more than 6,000 rare diseases lack FDA-approved treatments or federally-funded research.