Sharing my journey. A day living with Syringomyelia and one of many daily battles we fight. I’ve started Pulsed Electromagnetic field and cryotherapy interventions with the goal to shrink this cyst in my spinal cord. This is uncharted territory in the medical feild. There is no research, no treatment and no protocol for syringomyelia in our medical society. I’m blazing my own path as well as for others to find the cure. I will win this battle. Keep fighting syringomyelia community! #SAAC #IAMHEA
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FacebookAngela Rose Santoro
New to a syringomyelia diagnosis and still looking for answers? Here is what is happening inside the cord. Syringomyelia is a fluid dynamics problem in the spinal cord. Cerebrospinal fluid CSF cushions brain and cord with each heartbeat. When outflow is blocked, pressure gradients drive fluid into cord tissue, through perivascular channels. The result is a syrinx that distorts sensory and motor pathways. Early changes often involve the crossing pain and heat fibers. Pain and heat can vanish whil
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